I was diagnosed with Essential Thrombocytosis in Feb 2010 by a Hematologist. I am currently in my early 30s and symptoms like fever, headaches, dizziness and sweating for more than a week triggered me to seek medical attention as it is not a normal fever that I used to experience. With the doctor’s recommendation, I went through a full blood picture examination to rule out Dengue fever, which is quite common in asian countries due to the climate.
The outcome of the blood examination was surprising and yet something to worry about. My platelet counts were more than a million (normal person’s platelet count: between 150,000 to 400,000 platelets per microliter of blood). I was immediately referred to a Hematologist for professional and specialist opinion and treatement. I was put on Hydroxyurea and Aspirin to reduce my platelet counts. With known side effects from the Hydrea treatment (see Treatment section), I was recommended for the Interferon Alfa injection, which I took once a weeek for 1.5 months. However, there is also a side effect from the treatment, which defers from different patients. It impacts my liver and I was immediately removed from the treatment. I was then administered with “Essentiale Forte N” which supports the liver function.
I was lucky at that moment as my platelet counts went down to the normal level of 405,000 and within weeks my liver enzime and function was back to normal level. I have not been on any treatment for the past few months. However, I am on constant observation by my Hematologist as I was told that I might suffered from high Platelet counts again in the near future.
I am still battling this non-curable blood disorder with many other patients worldwide, until I hope that one day that medical science will be able to find a cure.
This blog is meant to share experience, knowlege, news of new researches on blood disorder, meeting new friends who also suffered from this disorder and hopefully to share our concerns and hope for a better future to find a cure for this blood disorder. This site does not provide a professional medical opinion and will not be responsible for any medical attention or decision for treatments. Please seek a professional Medical Doctor or a Medical Specialist to diagnose and treat your case.
* I am running a survey to find out ET patients around the world and their location. If you sufferred from the following blood disorder or knows someone who does, please leave your comment(s) and share your thought(s) on ET. Please include the following information.
Country of origin, Sex, Age, Ethnicity